Ratings of Patient and Family-Centered Care Among Children Across the United States: A Cross-Sectional Analysis of the National Survey of Children’s Health

Molly Bloom; Shannon Headley; Blakelee Eggleston; Amy Hendrix-Dicken; Laura  Campion; Micah Hartwell

Ratings of Patient and Family-Centered Care Among Children Across the United States: A Cross-Sectional Analysis of the National Survey of Children’s Health

Molly Bloom, Shannon Headley, Blakelee Eggleston, Amy Hendrix-Dicken, Laura Campion, Micah Hartwell

Research output: Contribution to journal › Article › peer-review

Abstract

Background: Patient-and family-centered care (PFCC) requires partnerships among healthcare professionals, patients, and families. Research shows that PFCC improves health outcomes, enhances patient and family satisfaction, and reduces healthcare costs.

Methods: This study conducted a cross-sectional analysis of the National Survey of Children’s Health (NSCH) 2020-2021 to determine rates of parent-reported PFCC among US children. Researchers utilized NSCH-defined family-centered care and shared decision-making variables, scored from 1 (never) to 4 (always). The study calculated state and national averages, combined them to create a PFCC index, and visualized the data into heat maps.

Results: The study’s PFCC index ranged from 3.45-3.74 with a national average of 3.59 (SD=0.58).

Conclusion: The number of board-certified pediatricians per 100,000 children follows the trend of PFCC rankings, suggesting the need for advocacy for federal funding for medical education. Further, limited English proficiency may hinder PFCC, highlighting the need for guidelines regarding medical interpreters.

Original language	American English
Journal	Oklahoma State Medical Proceedings
Volume	8
Issue number	3
State	Published - 12 Dec 2024

Keywords

pediatrics
patient and family-centered care
family-centered care
shared-decision making

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https://www.okstatemedicalproceedings.com/index.php/OSMP/article/view/239

Cite this

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title = "Ratings of Patient and Family-Centered Care Among Children Across the United States: A Cross-Sectional Analysis of the National Survey of Children{\textquoteright}s Health",

abstract = "Background: Patient-and family-centered care (PFCC) requires partnerships among healthcare professionals, patients, and families. Research shows that PFCC improves health outcomes, enhances patient and family satisfaction, and reduces healthcare costs.Methods: This study conducted a cross-sectional analysis of the National Survey of Children{\textquoteright}s Health (NSCH) 2020-2021 to determine rates of parent-reported PFCC among US children. Researchers utilized NSCH-defined family-centered care and shared decision-making variables, scored from 1 (never) to 4 (always). The study calculated state and national averages, combined them to create a PFCC index, and visualized the data into heat maps.Results: The study{\textquoteright}s PFCC index ranged from 3.45-3.74 with a national average of 3.59 (SD=0.58).Conclusion: The number of board-certified pediatricians per 100,000 children follows the trend of PFCC rankings, suggesting the need for advocacy for federal funding for medical education. Further, limited English proficiency may hinder PFCC, highlighting the need for guidelines regarding medical interpreters.",

keywords = "pediatrics, patient and family-centered care, family-centered care, shared-decision making",

author = "Molly Bloom and Shannon Headley and Blakelee Eggleston and Amy Hendrix-Dicken and Laura Campion and Micah Hartwell",

note = "Ethical Statement: This study was determined to be non-human subjects research by the Oklahoma State University Institutional Review Board. This study adhered to the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines.",

year = "2024",

month = dec,

day = "12",

language = "American English",

volume = "8",

journal = "Oklahoma State Medical Proceedings",

issn = "2475-8914",

number = "3",

}

Bloom, M , Headley, S , Eggleston, B, Hendrix-Dicken, A, Campion, L & Hartwell, M 2024, 'Ratings of Patient and Family-Centered Care Among Children Across the United States: A Cross-Sectional Analysis of the National Survey of Children’s Health', Oklahoma State Medical Proceedings, vol. 8, no. 3. <https://www.okstatemedicalproceedings.com/index.php/OSMP/article/view/239>

TY - JOUR

T1 - Ratings of Patient and Family-Centered Care Among Children Across the United States: A Cross-Sectional Analysis of the National Survey of Children’s Health

AU - Bloom, Molly

AU - Headley, Shannon

AU - Eggleston, Blakelee

AU - Hendrix-Dicken, Amy

AU - Campion, Laura

AU - Hartwell, Micah

N1 - Ethical Statement: This study was determined to be non-human subjects research by the Oklahoma State University Institutional Review Board. This study adhered to the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines.

PY - 2024/12/12

Y1 - 2024/12/12

N2 - Background: Patient-and family-centered care (PFCC) requires partnerships among healthcare professionals, patients, and families. Research shows that PFCC improves health outcomes, enhances patient and family satisfaction, and reduces healthcare costs.Methods: This study conducted a cross-sectional analysis of the National Survey of Children’s Health (NSCH) 2020-2021 to determine rates of parent-reported PFCC among US children. Researchers utilized NSCH-defined family-centered care and shared decision-making variables, scored from 1 (never) to 4 (always). The study calculated state and national averages, combined them to create a PFCC index, and visualized the data into heat maps.Results: The study’s PFCC index ranged from 3.45-3.74 with a national average of 3.59 (SD=0.58).Conclusion: The number of board-certified pediatricians per 100,000 children follows the trend of PFCC rankings, suggesting the need for advocacy for federal funding for medical education. Further, limited English proficiency may hinder PFCC, highlighting the need for guidelines regarding medical interpreters.

AB - Background: Patient-and family-centered care (PFCC) requires partnerships among healthcare professionals, patients, and families. Research shows that PFCC improves health outcomes, enhances patient and family satisfaction, and reduces healthcare costs.Methods: This study conducted a cross-sectional analysis of the National Survey of Children’s Health (NSCH) 2020-2021 to determine rates of parent-reported PFCC among US children. Researchers utilized NSCH-defined family-centered care and shared decision-making variables, scored from 1 (never) to 4 (always). The study calculated state and national averages, combined them to create a PFCC index, and visualized the data into heat maps.Results: The study’s PFCC index ranged from 3.45-3.74 with a national average of 3.59 (SD=0.58).Conclusion: The number of board-certified pediatricians per 100,000 children follows the trend of PFCC rankings, suggesting the need for advocacy for federal funding for medical education. Further, limited English proficiency may hinder PFCC, highlighting the need for guidelines regarding medical interpreters.

KW - pediatrics

KW - patient and family-centered care

KW - family-centered care

KW - shared-decision making

M3 - Article

SN - 2475-8914

VL - 8

JO - Oklahoma State Medical Proceedings

JF - Oklahoma State Medical Proceedings

IS - 3

ER -

Ratings of Patient and Family-Centered Care Among Children Across the United States: A Cross-Sectional Analysis of the National Survey of Children’s Health

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