TY - JOUR
T1 - Community-Based Participatory Intervention Research with American Indian Communities
T2 - What is the State of the Science?
AU - Hearod, Jordan B.
AU - Wetherill, Marianna S.
AU - Salvatore, Alicia L.
AU - Jernigan, Valarie Blue Bird
N1 - Funding Information:
Manuscript received June 28, 2018. Initial review completed December 18, 2018. Revision accepted January 25, 2019. Published online February 26, 2019. This paper summarizes proceedings from the first author’s presentation at the First Annual Conference on Native American Nutrition in 2016. These analyses were conducted as part of the first author’s doctoral dissertation. None of the authors report a conflict of interest related to research presented in this article. Published in a supplement to Current Developments in Nutrition. This article appears as part of the supplement “Proceedings of the First and Second Annual Conferences on Native American Nutrition,” sponsored by the Shakopee Mdewakanton Sioux Community’s Seeds of Native Health campaign through a gift to the University of Minnesota. The guest editors of the supplement, Treena Delormier and Mindy Kurzer, have no conflicts of interest. The opinions expressed in this publication are those of the authors and are not attributable to the sponsors or the publisher, Editor, or Editorial Board of Current Developments in Nutrition. Online Supporting Material is available from the “Supplementary data” link in the online posting of the article and from the same link in the online table of contents at https://academic.oup.com/cdn/. Address correspondence to JBH (e-mail: jordan-hearod@ouhsc.edu). Abbreviations used: AI, American Indian; CBPR, community-based participatory research; IHS, Indian Health Service; IRB, Institutional Review Board; RCT, randomized controlled trial.
Funding Information:
The majority of studies received only federal funding (e.g., National Institute of Diabetes and Digestive and Kidney Diseases, National Cancer Institute, etc.) for research (61.9%). Over a fifth of the studies received funding solely from private foundations (e.g., American Cancer Society, Susan G. Komen Foundation) or from a combination of federal and private sources (21.4%). The remaining studies either made no mention of funding or received funding either from university grants or tribal or state funding (16.7%).
Publisher Copyright:
© 2019 American Society for Nutrition.
PY - 2019/2/13
Y1 - 2019/2/13
N2 - We conducted a 2-phase systematic review of the literature to examine the nature and outcomes of health research using a community-based participatory research (CBPR) approach with AI communities to assess both the value and the impact of CBPR, identify gaps in knowledge, and guide recommendations for AI research agendas. Using PRISMA guidelines, we searched the peer-reviewed literature published from 1995 to 2016 and identified and reviewed 42 unique intervention studies. We identified and catalogued key study characteristics, and using the Reliability-Tested Guidelines for Assessing Participatory Research Projects, we quantified adherence to participatory research principles across its four domains. Finally, we examined any association between community participation score and health outcomes. The majority of studies (76.7%) used an observational study design with diabetes, cancer, substance abuse, and tobacco being the most common topics. Half of the articles reported an increase in knowledge as the primary outcome. Our findings suggest that a CBPR orientation yields improved community outcomes. However, we could not conclude that community participation was directly associated with an improvement in health outcomes.
AB - We conducted a 2-phase systematic review of the literature to examine the nature and outcomes of health research using a community-based participatory research (CBPR) approach with AI communities to assess both the value and the impact of CBPR, identify gaps in knowledge, and guide recommendations for AI research agendas. Using PRISMA guidelines, we searched the peer-reviewed literature published from 1995 to 2016 and identified and reviewed 42 unique intervention studies. We identified and catalogued key study characteristics, and using the Reliability-Tested Guidelines for Assessing Participatory Research Projects, we quantified adherence to participatory research principles across its four domains. Finally, we examined any association between community participation score and health outcomes. The majority of studies (76.7%) used an observational study design with diabetes, cancer, substance abuse, and tobacco being the most common topics. Half of the articles reported an increase in knowledge as the primary outcome. Our findings suggest that a CBPR orientation yields improved community outcomes. However, we could not conclude that community participation was directly associated with an improvement in health outcomes.
KW - American Indian
KW - CBPR
KW - community-based participatory research
KW - intervention science
KW - Native American
KW - systematic review
UR - http://www.scopus.com/inward/record.url?scp=85074876517&partnerID=8YFLogxK
U2 - 10.1093/cdn/nzz008
DO - 10.1093/cdn/nzz008
M3 - Article
AN - SCOPUS:85074876517
SN - 2475-2991
VL - 3
SP - 39
EP - 52
JO - Current Developments in Nutrition
JF - Current Developments in Nutrition
ER -